Parenting is tough anyway. But dealing with children afflicted with POTS can present challenges far beyond the norm. Among other things, there can be a vicious cycle between physiological and behavioral issues, one making the other worse, social pressures, negativity from other parents and more. From what we have gathered from POTS parents, there are a few things that can help alleviate a lot of the stress and make the journey to health a lot easier, such as following:
- Listen to your child and watch for patterns, what seems to help them, what doesn't and act accordingly.
- Consider adding an exercise program if they're not already involved with something--let them pick something they like.
- Keep lots of natural beverages on hand, juices, etc
- Keep a variety of salty snack food on hand, as well as any fresh fruit or vegetable snacks as these all help with electrolytes
- Meet with teachers, caregivers, etc anyone that is in regular contact with your child and make sure they're aware of the situation, what works and what doesn't.
- Listen to these teachers, caregivers, as well, since they are interacting with your child and might notice something you need to know about.
- Don't worry about days they miss at school due to POTS symptoms--focus on their recovery.
- If you're going to join support groups, get some reviews before joining and avoid the negative ones--negativity and complaining sessions isn't support.
- Consider counseling for you and your child, if you're getting to your 'wits end' and finding it hard to cope. The right counselor can really help.
- If you've been only seeing your regular physician for POTS help, consider also seeing a POTS specialist as they can often provide helpful alternative perspectives on treatment, prognosis, etc.
- Keep in mind that POTS can and does go away, so keep that hope and share with your child in a positive manner regularly.
If you looking for help with POTS, one of your best choices is Dysautonomia-MVP Center LLC in Birmingham, AL. Dr Paula Moore and Dr Susan Phillips bring many years of effective experience with POTS and other autonomic disorders, and often help patients get better when no one else has been able to. Wherever you are, call for an appointment today at 205-286-3200. We're here to help you get better faster!
Dysautonomia-MVP Center, LLC
Accurate Diagnosis & Treatment for Better Results
2470 Rocky Ridge Road Vestavia Hills, Alabama
35243
(205) 286-3200
